Public Standing Group: Newborn Genomes Programme
Genomics England · United Kingdom
Key facts
- Estimated value
- £100,000
- Closing date
- 05 Dec 2023
- Contract starts
- 03 Jan 2024
- Contract ends
- 03 Jan 2025
- Procedure
- Open procedure (below threshold)
- Buyer type
- Other public body
Description
This procurement focuses on the facilitation and management of a group of members of the public drawn from previous dialogues to deliberate on:
The implications of storing a baby's genome over their lifetime
Other issues, as they arise, in the delivery of the Generation Study - particularly those which would benefit from public deliberation
The group will need to run for a period of one year and examples of the issues that might be deliberated on include:
- Expectations of genomics over a babies' lifetime: exploring acceptable uses
- Involving young people as they grow up: navigating consent and assent
- Disclosing genomic findings over a person's lifetime: how, when, why, who?
- Relationships between genomic and wider health data
- Health records and the incorporation of genomic data
- Clinical access to genomic data: exploring the boundaries
- Genomic futures: newborn screening implications for the future of prenatal testing
- Reanalysing genomic data: exploring parameters
Additional information: Please register on the e-tendering portal (Bravo) on the link provided. Once registered, you can find the opportunity under project title Public Standing Group on Ethics or the project reference "project_868".
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