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Awarded contract
Published 16 Jun 2026

International Rare Disease Consultation

Cardiff and Vale University Health Board · Wales

Key facts

Contract value
£37,500
Awarded
26 Mar 2026
Contract starts
31 Mar 2026
Contract ends
31 Mar 2028
Procedure
Below threshold - without competition
Buyer type
Health

Awarded to

SupplierValue
Quay Central Limited£37,500

Description

The Cardiff and Vale University Health Board plan to lead a global Priority Setting Partnership (PSP) on rare diseases using the James Lind Alliance (JLA) approach. This process brings together patients, carers, and healthcare professionals to identify the most important unanswered research questions. A steering group of 20 international stakeholders, half of whom will be people with lived experience of rare diseases or their advocates will define the project’s scope. The PSP will take a broad, inclusive view, gathering research priorities from people of all ages and from low-, middle-, and high income countries

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